15-year-old Grace Novacheck is a seasoned pianist, a veteran vlogger who is good at cooking and has his own YouTube page.
She is also an advocate, helping people understand that a person’s disability does not define them.
“I have the so-called Escobar Syndrome. It’s like a small branch of the big picture called arthrogryposis, which tightens muscles and joints. It’s a hereditary disease and is currently a known treatment. But I’ve had 33 surgeries and now I can live my life to the fullest, “says Novacheck.
That’s something she doesn’t take for granted.
“Sure, I’m a little different, but I can do some really cool things,” she said.
Still, Grace never imagined she would get to where she went last week at the heart of New York Fashion Week.
This is an opportunity following a meeting with Gamut Talent Management on behalf of people with disabilities.
Its founder, Mindy Shire, is also the founder of the Runway of Dreams Foundation, a non-profit organization that works towards the future of inclusion, acceptance and opportunity in the fashion industry for people with disabilities.
After meeting Grace, she offered to come to the model.
After practicing on the catwalk, she dressed in Zappos Adaptive and specialized in hair and makeup.
It was said that he was nervous, but it was an unforgettable experience.
“Just because we have a disability or look a little different, walk a little differently, or speak a little differently doesn’t mean we can’t dress super cool. We were able to spread awareness to people, “Novacheck said.
The mission is to give clothes access to all the needs as common as petite and plus size. For some, it means pants that are fastened with velcro or magnets rather than zippers. In the case of grace, it means wide shoes to accommodate orthopedic leg brace.
Grace said she wasn’t sure if fashion would be the career path she wanted to pursue, but last week’s show opened her eyes to let her know it could be.
For her parents, seeing Grace walk on the catwalk reminds her of working as a role model for others by taking advantage of the opportunity.
“Other little kids who may look and move differently can see and know her. I can do other things,” said Grace’s mother, Sunny Novacheck. ..
For more information on Grace, check out our social media channels on YouTube, TikTok and Instagram.